How many times have you started to have a conversation with someone about Hepatitis C only to have it blow up in your face? Have you ever heard someone say something about Hep C that didn't seem quite right to you? You were probably right something was amiss. A discussion about Hepatitis C can...
As per Wikipedia, the definition of a stigma is as follows: "Stigma is a word that originally means a "sign", "point", or "branding mark"." Wikipedia goes on to call stigma "A badge of shame, a physical mark of infamy or disgrace." Damn that w...
Recently, the CDC (Center for Disease Control) issued a statement that all Baby Boomers should be tested for Hepatitis C. The question often comes up as to why this particular segment of people is so vulnerable. What does being born between 1945 and 1965 have to do with Hepatitis C? What was di...
Buyer Beware! There are several snake oil salesmen out there who are claiming to have cured their own Hepatitis C with herbs, supplements and parking lot gravel. Okay, maybe not the parking lot gravel but it might as well be. What you need to remember is that there are two different types of...
Most every adult woman (and an occasional man) has enjoyed a manicure and a pedicure at a nail salon or spa. That 30 minute pedicure can be so relaxing but are you aware of the danger lurking in that nail salon? Although few individuals recognize the medical risks associated with this common pr...
Many ill South Africans live and die suffering from unnecessary and excruciating pain. It is estimated that almost all HIV patients (96%) and more than two in three (70%) of cancer patients experience severe pain during the course of their disease because they do not have access to cheap and effective pain medication.
Morphine is a safe, effective and cheap treatment for pain, yet, many people don't have access to it, and in fact, many South Africans die in agonising pain because it is not made available to them.
"Pain, pain, pain. The last two weeks of that man's life was just pain from beginning to end," recalls Sister Delores Cano, a nurse at the Nightingale Hospice in De Aar in the Northern Cape. Cona had to stand by helplessly while a 49-year old cancer patient died in unbearable pain because the local health services refused to issue him with more morphine.
"Doctors are scared to prescribe morphine and we have to put up a big fight to get it for our patients," says Cona, a stout woman with a kind face who speaks pure Afrikaans with a charming Cape accent. "And often when we get morphine, the doses isn't enough to cover the pain for long."
When a patient's disease has progressed to a certain point, some medical professionals are of the opinion that they have done all they could and then stop treatment, often because they don't want to spend any more money or resources on a patient who will day in a couple of days anyway, explains Cona.
"But we [hospice] don't work that way. The patient still needs everything. It is not in our hands to say he will die now, or die later."
Proper pain management is an issue not only in the rural communities of South Africa, but all over the country, according to Dr Liz Gwyther, CEO of the Hospice Palliative Care Association of South Africa (HPCA).
Doctors have been taught that pain is a sign of something else, and in their quest to find and treat the cause, they often neglect to treat the pain, says Gwyther, who also teaches palliative care at the University of Cape Town. "They often don't even assess the pain adequately."
But there is hope for patients. A new law that will enable trained and registered nurses to prescribe scheduled medicine, including morphine, is expected to come into effect before the end of the year. This will mean that patients can be prescribed morphine at clinics that operate without doctors - as most clinics in the country do. Although this new legislation will put patients one step closer to accessing pain treatment, there are still more barriers to overcome.
In 2009, at least 200 000 South Africans died while suffering moderate to severe pain, 111 307 of them without receiving any treatment for it. This is according to the Global Access to Pain Relief Initiative, who calculated these figures using South Africa's cancer and HIV/Aids death statistics. These numbers therefore do not include traumatic injury, childbirth or other painful causes of death, and numbers are possibly much higher.
Even more alarming is that the number of cancer cases is estimated to double over the next 20 to 40 years, and the greatest increase is expected in low and middle-income countries, like South Africa. By 2030 it is predicted that there will be 26 million new cancer cases and 17 million cancer deaths per year.
"People with cancer and HIV equate the illness with pain, and many don't realise that treatment for pain should be available," says Gwyther.
Please sign the ATC Salvage Therapy Petition Join us in asking Congressman Alcee Hastings and Congresswomen Maxine Waters to send a ‘Dear Colleague’ letter to Anthony Fauci, Director of NIAID, asking for the federal facilitation of apricitabine (ATC). ATC is a phase III nucleoside reverse transcriptase inhibitor (NRTI) that has been shown to be safe and effective in treating people with HIV. It works against viruses that are resistant to several other nukes and could ...
Researchers from Johns Hopkins Children’s Center, the University of Mississippi Medical Center and the University of Massachusetts Medical School announced today at CROI2013 the discovery of the first infant functionally cured of HIV. The baby, a female now two and a half years old, received 3 HIV medications when brought to the hospital at 30 hours old. Viral load tests were performed during the first few weeks that showed a rapidly decreasing viral load which reached ...
At the 19th International AIDS Conference (AIDS 2012) in Washington D.C., the CDC reported that only 1 out of 4 HIV patients in the U.S. have HIV under control, which is defined as complete viral suppression. Warning bells should be ringing in the scientific and HIV advocacy communities. While much progress has been made in the last three decades in the treatment of HIV, tens of thousands of people living with HIV (PLWH) are currently struggling to construct viable treat...
Paige Rawl is 17 and HIV positive, but while her life has been shaped by HIV it isn't ruled by it. When Paige Rawl starts her senior year at Indianapolis’s Herron High School next month, she'll be cheer captain and a member of the student government and prom committee. This summer, the 17-year-old held down a part-time job at Hollister, hawking the popular Southern California-inspired clothing brand. The all-American girl — who happens to be HIV positive. Paige was in...
The HIV community has been abuzz with the August FDA approval of what had been termed “the Quad”, the second one-pill-once-a-day combination antiretroviral drug. Marketed by Gilead under the name Stribild, the drug contains two NRTIs (tenofovir and emtricitabine), an integrase inhibitor (elvitegravir) and an integrase booster (cobicistat) and is approved for use in treatment naïve patients with either drug resistant or wild type virus. In comparison to Atripla, the first...

Bristol-Myers Squibb Company (NYSE: BMY) today announced that the U.S. Food and Drug Administration (FDA) has approved a supplemental new drug application (sNDA) for SUSTIVA® (efavirenz), including dosing recommendations for...

California and other states would be pressured to amend or repeal criminal laws that single out HIV-positive people under a bipartisan bill co-authored and introduced this week by Rep. Barbara...
Mission Statement
At HIV Haven we wish to provide our readers with vital cutting edge information to help expand HIV knowledge and promote activism, particularly that which works towards an end to the HIV pandemic. It is our desire to bring to you the scientific, medical and social advances that given the appropriate attention and support, could change the course of the HIV pandemic, lessen the devastating effects of HIV and AIDS, better the quality and quantity of life for people living with HIV and even yield an eventual end to the HIV pandemic. We also provide the basics of HIV transmission and treatment.
We will focus on issues such as innovative drug development, strategic activist campaigns, HIV relationships and novel HIV and HIV cure research. We also will bring you advances in Hepatitis C (HCV), a common HIV co-infection. Whether you are living with HIV/AIDS, HIV and HCV, love someone who is, are an activist, advocate, researcher, physician or just an interested party, we hope here at HIV Haven we can help you find what you are looking for.