How many times have you started to have a conversation with someone about Hepatitis C only to have it blow up in your face? Have you ever heard someone say something about Hep C that didn't seem quite right to you? You were probably right something was amiss. A discussion about Hepatitis C can...
As per Wikipedia, the definition of a stigma is as follows: "Stigma is a word that originally means a "sign", "point", or "branding mark"." Wikipedia goes on to call stigma "A badge of shame, a physical mark of infamy or disgrace." Damn that w...
Recently, the CDC (Center for Disease Control) issued a statement that all Baby Boomers should be tested for Hepatitis C. The question often comes up as to why this particular segment of people is so vulnerable. What does being born between 1945 and 1965 have to do with Hepatitis C? What was di...
Buyer Beware! There are several snake oil salesmen out there who are claiming to have cured their own Hepatitis C with herbs, supplements and parking lot gravel. Okay, maybe not the parking lot gravel but it might as well be. What you need to remember is that there are two different types of...
Most every adult woman (and an occasional man) has enjoyed a manicure and a pedicure at a nail salon or spa. That 30 minute pedicure can be so relaxing but are you aware of the danger lurking in that nail salon? Although few individuals recognize the medical risks associated with this common pr...
Daniel Berrner was diagnosed with HIV and hepatitis C in 2005, but it took four years to get the HIV infection under control enough to tackle the hepatitis C. Berrner stayed at Laguna Honda Hospital during the nearly yearlong treatment for hepatitis C, which involved multiple injections of interferon every week and daily doses of ribavirin. Both drugs are known to cause significant emotional and physical side effects, and the treatment sometimes fails.
The drugs worked for Berrner, now 49, and he is free of hepatitis C. He now works as a peer supporter at San Francisco General Hospital and Laguna Honda, helping other patients deal with their hepatitis C diagnosis and treatment.
I went through the old standard treatment of interferon and ribavirin, for the full 48 weeks. I did clear the virus, which made it all worthwhile. But it was a really, really tough year. I probably had every side effect possible, and then some.
The very first day, the first side effect I experienced was extreme depression and suicidal thoughts. Those subsided, as far as suicidal thoughts, about three days later. As treatment went on, the biggest side effect was the depression, and the nausea and flu-like symptoms. It's pretty standard, but I had them all the entire time, for almost a year.
I was an active IV drug user. Though I tested positive for HIV and hepatitis C in 2005, I'm certain I contracted both viruses in the early 2000s. My HIV numbers were really, really bad.
It took a long time to get to where my HIV situation was in a good space, with all the numbers in the right area, in order to go on treatment for the hepatitis. Then I spent a solid year discussing treatment with my primary care provider, with liver specialists, with Dr. (Brad) Hare at San Francisco General (in the HIV/AIDS ward).
There was a lot of misunderstanding on my part about how difficult the treatment was going to be. I think some of it was inflated in my mind. And the success rate wasn't that great. It was a 50-50 crapshoot. So there was that discussion in my mind, do I want to go through a year of hell and maybe not clear the virus?
But I knew I was getting healthy and stronger and treatment was something I wanted to do. Of the two viruses in my system, the hepatitis C was the one I could do something about. I went to a support group for a year prior to going on treatment, just to hear from other people who had gone through it.
You can talk through medical terminology with your doctors, and it's not that I wasn't intelligent enough to understand what they were saying, but hearing the gut reaction from individuals, how they managed everything, that made all the difference in the world.
I was very fortunate to be in Laguna Honda for the hepatitis C treatment. I would hate to think what would have happened if I'd had to do it outside. Now I work with people who do it at home, some of them while they're working, and I have the utmost admiration for them. The challenges are really great and they're working through it.
I feel really good now. I'm going to be turning 50, but I keep saying I feel like I'm 30, even though I don't remember where I was at 30. I feel like I've got a new lease on life.
I'm going on four years clean - a lot of my health issues, and even going on treatment for hepatitis C, have kept me sober. Having gone through what I've gone through, who would want to go back and return to that life? I would never jeopardize my health now.
Please sign the ATC Salvage Therapy Petition Join us in asking Congressman Alcee Hastings and Congresswomen Maxine Waters to send a ‘Dear Colleague’ letter to Anthony Fauci, Director of NIAID, asking for the federal facilitation of apricitabine (ATC). ATC is a phase III nucleoside reverse transcriptase inhibitor (NRTI) that has been shown to be safe and effective in treating people with HIV. It works against viruses that are resistant to several other nukes and could ...
Researchers from Johns Hopkins Children’s Center, the University of Mississippi Medical Center and the University of Massachusetts Medical School announced today at CROI2013 the discovery of the first infant functionally cured of HIV. The baby, a female now two and a half years old, received 3 HIV medications when brought to the hospital at 30 hours old. Viral load tests were performed during the first few weeks that showed a rapidly decreasing viral load which reached ...
At the 19th International AIDS Conference (AIDS 2012) in Washington D.C., the CDC reported that only 1 out of 4 HIV patients in the U.S. have HIV under control, which is defined as complete viral suppression. Warning bells should be ringing in the scientific and HIV advocacy communities. While much progress has been made in the last three decades in the treatment of HIV, tens of thousands of people living with HIV (PLWH) are currently struggling to construct viable treat...
Paige Rawl is 17 and HIV positive, but while her life has been shaped by HIV it isn't ruled by it. When Paige Rawl starts her senior year at Indianapolis’s Herron High School next month, she'll be cheer captain and a member of the student government and prom committee. This summer, the 17-year-old held down a part-time job at Hollister, hawking the popular Southern California-inspired clothing brand. The all-American girl — who happens to be HIV positive. Paige was in...
The HIV community has been abuzz with the August FDA approval of what had been termed “the Quad”, the second one-pill-once-a-day combination antiretroviral drug. Marketed by Gilead under the name Stribild, the drug contains two NRTIs (tenofovir and emtricitabine), an integrase inhibitor (elvitegravir) and an integrase booster (cobicistat) and is approved for use in treatment naïve patients with either drug resistant or wild type virus. In comparison to Atripla, the first...

Bristol-Myers Squibb Company (NYSE: BMY) today announced that the U.S. Food and Drug Administration (FDA) has approved a supplemental new drug application (sNDA) for SUSTIVA® (efavirenz), including dosing recommendations for...

California and other states would be pressured to amend or repeal criminal laws that single out HIV-positive people under a bipartisan bill co-authored and introduced this week by Rep. Barbara...
Mission Statement
At HIV Haven we wish to provide our readers with vital cutting edge information to help expand HIV knowledge and promote activism, particularly that which works towards an end to the HIV pandemic. It is our desire to bring to you the scientific, medical and social advances that given the appropriate attention and support, could change the course of the HIV pandemic, lessen the devastating effects of HIV and AIDS, better the quality and quantity of life for people living with HIV and even yield an eventual end to the HIV pandemic. We also provide the basics of HIV transmission and treatment.
We will focus on issues such as innovative drug development, strategic activist campaigns, HIV relationships and novel HIV and HIV cure research. We also will bring you advances in Hepatitis C (HCV), a common HIV co-infection. Whether you are living with HIV/AIDS, HIV and HCV, love someone who is, are an activist, advocate, researcher, physician or just an interested party, we hope here at HIV Haven we can help you find what you are looking for.