How many times have you started to have a conversation with someone about Hepatitis C only to have it blow up in your face? Have you ever heard someone say something about Hep C that didn't seem quite right to you? You were probably right something was amiss. A discussion about Hepatitis C can...
As per Wikipedia, the definition of a stigma is as follows: "Stigma is a word that originally means a "sign", "point", or "branding mark"." Wikipedia goes on to call stigma "A badge of shame, a physical mark of infamy or disgrace." Damn that w...
Recently, the CDC (Center for Disease Control) issued a statement that all Baby Boomers should be tested for Hepatitis C. The question often comes up as to why this particular segment of people is so vulnerable. What does being born between 1945 and 1965 have to do with Hepatitis C? What was di...
Buyer Beware! There are several snake oil salesmen out there who are claiming to have cured their own Hepatitis C with herbs, supplements and parking lot gravel. Okay, maybe not the parking lot gravel but it might as well be. What you need to remember is that there are two different types of...
Most every adult woman (and an occasional man) has enjoyed a manicure and a pedicure at a nail salon or spa. That 30 minute pedicure can be so relaxing but are you aware of the danger lurking in that nail salon? Although few individuals recognize the medical risks associated with this common pr...
The AIDS Memorial Quilt has returned to Washington, D.C., for the first time in 16 years, marking the 25th anniversary of The NAMES Project and thirty years in the struggle to stop the spread of HIV and AIDS around the world.
Every morning volunteers take on the laborious process of unfolding the panels of the quilt on the National Mall and then packing them up in the evening, a process that can only be described as a labor of love.
The quilt has over 94,000 names of AIDS sufferers on it and has been seen by over 18 million people worldwide. Through tours and special events, the quilt has raised over $4 million for direct services for people living with AIDS.
For the quilt's creators, this patch of green lawn in the heart of the nation's capital holds special significance -- the quilt was first displayed there in October of 1987 during the National March on Washington for Lesbian and Gay Rights, a time when many felt the federal government was turning its back on the AIDS epidemic. For Gert McMullin, the quilt production coordinator, it's a place of anger.
"I'm here to throw (the quilt) in front of my government and lay down my dead friends and hope that somebody will start caring and do something about it," said McMullin.
McMullin said she was close to losing her mind in the early 1980s, when many of her friends were dying of AIDS during the height of the epidemic in San Francisco.
"I had to find something I could do that I could talk about them," McMullin said, fighting back tears.
That "something" was the NAMES Project: for 25 years she has been sewing, stitching and displaying thousands of quilt panels dedicated to those who lost their lives to the AIDS virus.
"It's a place you can be with people who feel the same pain, and will let you talk about these people," McMullin said.
The quilt is the brainchild of San Francisco gay-rights activist Cleve Jones, who in 1987, helped found The NAMES Project. Today, the quilt consists of 48,000 panels and takes up 1.3 million square feet, making it impossible to view in its entirety at any one time. If a visitor were to spend one minute to view each panel, it would take over 33 days to see the entire quilt.
Joan Juster is the Reader Coordinator at NAMES Project AIDS Memorial Quilt. She oversees the reading of the names, where volunteers memorialize those who have lost their lives to HIV.
For Juster, working with The NAMES Project is her way of doing something about an issue that is close to her heart.
"You know, I remember when I was a kid asking my Daddy, 'What did you do during World War II, Daddy,' and he told me that everybody had to help," Juster said. "Well, when AIDS came along in the early '80s, I was living in San Francisco. It was our war. Our community was decimated. I had to help, I had to help somehow."
"People did see the quilt, and they got it. They got that they had to do something about AIDS," Juster said. "They got that it was about real people and real individuals, they saw that the love sewn into the quilt and it changed their minds about, about gay people, because it was all about gay people in those early days, and about the quilt itself, and about AIDS."
The quilt is on display from June 27 to July 1, and July 4 through July 8, as part of the Smithsonian Folklife Festival on the National Mall. A full list of display times and locations can be found at http://quilt2012.org/quilt-display-locations/.
Please sign the ATC Salvage Therapy Petition Join us in asking Congressman Alcee Hastings and Congresswomen Maxine Waters to send a ‘Dear Colleague’ letter to Anthony Fauci, Director of NIAID, asking for the federal facilitation of apricitabine (ATC). ATC is a phase III nucleoside reverse transcriptase inhibitor (NRTI) that has been shown to be safe and effective in treating people with HIV. It works against viruses that are resistant to several other nukes and could ...
Researchers from Johns Hopkins Children’s Center, the University of Mississippi Medical Center and the University of Massachusetts Medical School announced today at CROI2013 the discovery of the first infant functionally cured of HIV. The baby, a female now two and a half years old, received 3 HIV medications when brought to the hospital at 30 hours old. Viral load tests were performed during the first few weeks that showed a rapidly decreasing viral load which reached ...
At the 19th International AIDS Conference (AIDS 2012) in Washington D.C., the CDC reported that only 1 out of 4 HIV patients in the U.S. have HIV under control, which is defined as complete viral suppression. Warning bells should be ringing in the scientific and HIV advocacy communities. While much progress has been made in the last three decades in the treatment of HIV, tens of thousands of people living with HIV (PLWH) are currently struggling to construct viable treat...
Paige Rawl is 17 and HIV positive, but while her life has been shaped by HIV it isn't ruled by it. When Paige Rawl starts her senior year at Indianapolis’s Herron High School next month, she'll be cheer captain and a member of the student government and prom committee. This summer, the 17-year-old held down a part-time job at Hollister, hawking the popular Southern California-inspired clothing brand. The all-American girl — who happens to be HIV positive. Paige was in...
The HIV community has been abuzz with the August FDA approval of what had been termed “the Quad”, the second one-pill-once-a-day combination antiretroviral drug. Marketed by Gilead under the name Stribild, the drug contains two NRTIs (tenofovir and emtricitabine), an integrase inhibitor (elvitegravir) and an integrase booster (cobicistat) and is approved for use in treatment naïve patients with either drug resistant or wild type virus. In comparison to Atripla, the first...

Bristol-Myers Squibb Company (NYSE: BMY) today announced that the U.S. Food and Drug Administration (FDA) has approved a supplemental new drug application (sNDA) for SUSTIVA® (efavirenz), including dosing recommendations for...

California and other states would be pressured to amend or repeal criminal laws that single out HIV-positive people under a bipartisan bill co-authored and introduced this week by Rep. Barbara...
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At HIV Haven we wish to provide our readers with vital cutting edge information to help expand HIV knowledge and promote activism, particularly that which works towards an end to the HIV pandemic. It is our desire to bring to you the scientific, medical and social advances that given the appropriate attention and support, could change the course of the HIV pandemic, lessen the devastating effects of HIV and AIDS, better the quality and quantity of life for people living with HIV and even yield an eventual end to the HIV pandemic. We also provide the basics of HIV transmission and treatment.
We will focus on issues such as innovative drug development, strategic activist campaigns, HIV relationships and novel HIV and HIV cure research. We also will bring you advances in Hepatitis C (HCV), a common HIV co-infection. Whether you are living with HIV/AIDS, HIV and HCV, love someone who is, are an activist, advocate, researcher, physician or just an interested party, we hope here at HIV Haven we can help you find what you are looking for.