How many times have you started to have a conversation with someone about Hepatitis C only to have it blow up in your face? Have you ever heard someone say something about Hep C that didn't seem quite right to you? You were probably right something was amiss. A discussion about Hepatitis C can...
As per Wikipedia, the definition of a stigma is as follows: "Stigma is a word that originally means a "sign", "point", or "branding mark"." Wikipedia goes on to call stigma "A badge of shame, a physical mark of infamy or disgrace." Damn that w...
Recently, the CDC (Center for Disease Control) issued a statement that all Baby Boomers should be tested for Hepatitis C. The question often comes up as to why this particular segment of people is so vulnerable. What does being born between 1945 and 1965 have to do with Hepatitis C? What was di...
Buyer Beware! There are several snake oil salesmen out there who are claiming to have cured their own Hepatitis C with herbs, supplements and parking lot gravel. Okay, maybe not the parking lot gravel but it might as well be. What you need to remember is that there are two different types of...
Most every adult woman (and an occasional man) has enjoyed a manicure and a pedicure at a nail salon or spa. That 30 minute pedicure can be so relaxing but are you aware of the danger lurking in that nail salon? Although few individuals recognize the medical risks associated with this common pr...
Lynne Rhys and I were never supposed to become friends. It was just too unlikely.
She is a divorced woman raising a teenaged daughter, and was barely aware of a “gay community” until she stepped tentatively out of the closet in midlife. She has a quiet and soft-spoken grace. She has manners. She readily burdens the blame if it means saving your feelings. She’s one of those people who apologize when I miss a turn while driving us somewhere, as if it must have been her fault.
When she walked into an audition for a play I was directing a few years ago, she was certain she wasn’t good enough, but her insecurity was unacceptable to her – the struggle between her ferocious talent and her painful modesty has been waged her entire life – and she gave an audition of such humanity and pathos that I changed the script I had written to showcase her gifts.
“Stand slightly more to your left,” I would ask as we rehearsed. “I’m sorry,” would be the reply, to that or to any request or observation, including the weather. How could a creature of such obvious worth have such an absence of ego? I often wondered, before immediately returning to other, more important thoughts. About myself.
Two months later her performance was the kind that required the audience to listen closely, and they leaned in, drawn to her in the same way I was throughout the rehearsal process. She broke their hearts with such deliberate precision that people still speak of it.
Lynne doesn’t like talking about herself. But oh, how she loves to hear stories from Mark, and that’s when our budding friendship began to make sense to me. For hours I blather on, towering over her small frame, fluffing the curls on her head below me as she indulges my excesses and wonders when I will take my hands out of her hair. Please. I’m sorry.
I am the closest friend she has ever known to have HIV. Her personal knowledge of the crisis was largely limited to watching it unfold on television and thinking that people treated “that young boy Ryan White really badly.” So our friendship has meant lessons for her on t-cells, viral loads and why my medication bag is the same size as my gym bag. She listens and learns, and no longer believes that she must keep her distance when she has a cold or else I could die.
She has now had conversations with her daughter about safer sex, and then for good measure had the same conversation with her daughter’s boyfriend.
When the Centers for Disease Control and Prevention (CDC) asked me to participate in their new campaign, “Let’s Stop HIV Together,” I was impressed with their concept of pairing people living with HIV with an HIV negative member of their support system. The message is clear: we all share a responsibility for curbing HIV infections and supporting each other, positive and negative. And I knew right away who my “negative” would be.
Lynne was flattered and then questioned my selection, certain I must have better options. I knew that the woman who modeled humility to me every day was my only choice, and I insisted. The campaign involved visiting a production facility complete with wardrobe decisions, make-up artists, a photo shoot and an interview on video with both of us. She felt like the Queen of Sheba. Watching her was the very best part of the day, and the memory of it has brightened many days since.
In the photo of us, my cocksure grin and her enveloping embrace are the very essence of a friendship that I treasure deeply today. Seeing it in print has also brought to mind the many friends that came before Lynne who are now lost. But Lynne is not a placeholder and she is not a substitute. She is a gift of my survival, and the right friend at the right time to help me conduct my advancing years with more maturity than I might muster alone.
Moments after the photo was taken, Lynne slipped from the box on which she was standing and fell hard. Several of us rushed to help her, but she didn’t fret or make a sound. That is, except to say “I’m sorry.”
After a few days of pain, Lynne visited the doctor and discovered her foot was broken. “Why didn’t you say something?” I asked her, disbelieving, when she admitted it was hurting that day during our video interview. “Because I was afraid they might stop,” she said, “and I was having so much fun being with you.”
Much has been written by me about the “viral divide” between those who are HIV positive and those who are not. But not today. Today, the CDC has a new campaign with hopes of bridging this divide. On one of their posters, Lynne Rhys is beaming beside me, luxuriating in the joy of friendship, and confident that she is right where she belongs.
And she doesn’t look the least bit sorry.
By: Mark S. King
Please sign the ATC Salvage Therapy Petition Join us in asking Congressman Alcee Hastings and Congresswomen Maxine Waters to send a ‘Dear Colleague’ letter to Anthony Fauci, Director of NIAID, asking for the federal facilitation of apricitabine (ATC). ATC is a phase III nucleoside reverse transcriptase inhibitor (NRTI) that has been shown to be safe and effective in treating people with HIV. It works against viruses that are resistant to several other nukes and could ...
Researchers from Johns Hopkins Children’s Center, the University of Mississippi Medical Center and the University of Massachusetts Medical School announced today at CROI2013 the discovery of the first infant functionally cured of HIV. The baby, a female now two and a half years old, received 3 HIV medications when brought to the hospital at 30 hours old. Viral load tests were performed during the first few weeks that showed a rapidly decreasing viral load which reached ...
At the 19th International AIDS Conference (AIDS 2012) in Washington D.C., the CDC reported that only 1 out of 4 HIV patients in the U.S. have HIV under control, which is defined as complete viral suppression. Warning bells should be ringing in the scientific and HIV advocacy communities. While much progress has been made in the last three decades in the treatment of HIV, tens of thousands of people living with HIV (PLWH) are currently struggling to construct viable treat...
Paige Rawl is 17 and HIV positive, but while her life has been shaped by HIV it isn't ruled by it. When Paige Rawl starts her senior year at Indianapolis’s Herron High School next month, she'll be cheer captain and a member of the student government and prom committee. This summer, the 17-year-old held down a part-time job at Hollister, hawking the popular Southern California-inspired clothing brand. The all-American girl — who happens to be HIV positive. Paige was in...
The HIV community has been abuzz with the August FDA approval of what had been termed “the Quad”, the second one-pill-once-a-day combination antiretroviral drug. Marketed by Gilead under the name Stribild, the drug contains two NRTIs (tenofovir and emtricitabine), an integrase inhibitor (elvitegravir) and an integrase booster (cobicistat) and is approved for use in treatment naïve patients with either drug resistant or wild type virus. In comparison to Atripla, the first...

Bristol-Myers Squibb Company (NYSE: BMY) today announced that the U.S. Food and Drug Administration (FDA) has approved a supplemental new drug application (sNDA) for SUSTIVA® (efavirenz), including dosing recommendations for...

California and other states would be pressured to amend or repeal criminal laws that single out HIV-positive people under a bipartisan bill co-authored and introduced this week by Rep. Barbara...
Mission Statement
At HIV Haven we wish to provide our readers with vital cutting edge information to help expand HIV knowledge and promote activism, particularly that which works towards an end to the HIV pandemic. It is our desire to bring to you the scientific, medical and social advances that given the appropriate attention and support, could change the course of the HIV pandemic, lessen the devastating effects of HIV and AIDS, better the quality and quantity of life for people living with HIV and even yield an eventual end to the HIV pandemic. We also provide the basics of HIV transmission and treatment.
We will focus on issues such as innovative drug development, strategic activist campaigns, HIV relationships and novel HIV and HIV cure research. We also will bring you advances in Hepatitis C (HCV), a common HIV co-infection. Whether you are living with HIV/AIDS, HIV and HCV, love someone who is, are an activist, advocate, researcher, physician or just an interested party, we hope here at HIV Haven we can help you find what you are looking for.