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kevinKevin Maloney

I was diagnosed with HIV on March 3rd 2010, and one month later with follow up labs was told I had also contracted Hepatitis C (non IDU). I went through HCV treatment and have cured Hep C. My HIV has remained undetectable from 2 months after starting treatment. I am unemployed and looking for work in the HIV/AIDS field. I have a bachelors degree in Health Services Management. I am a self proclaimed patient advocate for PLWHA and for my Mom who has COPD. She has just been listed with UNOS for a lung transplant at New York Presbyterian Hospital. I am very familiar with supportive services available for PLWHA and with organ donations/procurement. I have bridged many individuals to organizations and services in hometowns across the country. Since my diagnosis I have felt an inate since of duty and responsiblity to further educate the public about HIV/AIDS, help reduce stigma, and stand up for what is right. I dream of a world free of HIV/AIDS and that one day soon these acronyms will be written into history!

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Created on 30 August 2012 Written by Kevin Maloney Category: Kevin's Blog

kevinBelow is a note I receive from my Father after he attended the 2012 ADAP Advocacy Associations 2nd Annual Leadership awards dinner, and watched me receive the ADAP Emerging Leader of the Year award, and then watched as I gave a rousing speech.


Kevin,

I want to acknowledge how very proud I am of you.  You know your mother would be very proud as well. It seems like you have found you’re calling in life. You have always had a passion for helping others; this goes back to your childhood years, when you used to volunteer at the senior citizen home that your grandfather lived in.

 
Created on 22 May 2012 Written by Kevin Maloney Category: Kevin's Blog

kevinNever before has the hashtag #HIV or #AIDS trended on Twitter, not even on World AIDS Day. With over 100 million users on Twitter and with a few months of preparation until the International AIDS Conference (IAC) is to be hosted in the USA (Washington, D.C.) from July 22-27, four HIV/AIDS activists have come together to assemble a team of faces and voices who will encourage the global community to tweet heavily during this week using the hashtags, #HIV, #AIDS and #IAC.

Together, through this campaign, we [the global community] can, we must, make #HIV and #AIDS a trend. This is a HUGE opportunity to bring much-needed awareness to the HIV/AIDS, global epidemic.

 
Created on 08 April 2012 Written by Kevin Maloney Category: Kevin's Blog

kevinWhat a year it has been with regard to scientific research, new treatment, new guidelines, and the hiring of D.R Colfax to run the Office of AIDS Policy (ONAP), and ever growing AIDS Drug Assistance Program challenges.  These have all been game changing events in the face of HIV/AIDS.

 
Created on 06 March 2012 Written by Kevin Maloney Category: Kevin's Blog

kevinReferencing the latest figure from the National Alliance of State and Territorial AIDS Directors (NASTAD), as of February 23, 2012,  4,251 individuals across 11 states are on the AIDS Drug Assistance Program (ADAP) waitlist. These are individuals who are uninsured or underinsured who have received an HIV+ diagnosis, and are unable to properly attain the drugs they need to remain alive, healthy and productive.

 

In support of the following letter sent to Gilead from the Fair Pricing Coalition, and signed by individual members, the FPC outlines its concerns, and requests specific actions be taken by Gilead. Any interested individual or organization is welcomed, and encouraged to sign on. Please share WIDELY across your networks:

 
Created on 03 March 2012 Written by Kevin Maloney Category: Kevin's Blog

kevinImportant: Make Sure All Your Contact Info Is Up to Date!

 

The U.S. Department of Health & Human Services' Health Resources & Services Administration (HRSA) -- which oversees HIV/AIDS support and services in the United States -- nearly a year ago put into place a rule that all 56 AIDS Drug Assistance Programs (ADAPs) must recertify its clients every six months. While very few states have complied from the beginning, it's not until most recently that letters have begun going out like rapid fire to ADAP enrollees in MANY states.

 
Created on 16 February 2012 Written by Kevin Maloney Category: Kevin's Blog

kevinHaving recently moved I am now unpacking and you know that one box we all have with pictures, notes, etc. from our ex's? Every couple years or so you'll open that box, because you remember how happy you were at that moment in time, and you need to read the notes to reassure yourself you are still that same person, that you are still loveable and deserve love again.

Now, if it was a bad break-up, any and all notes were destroyed, ripped up or burned. The memories faded and forgotten. Though, I think we all have that one person we'd like to know about today, how are they, what path in life did they choose, are they married, single, with kids or not? How might life have been if you stayed together, re-kindled your relationship? Maybe the break up was for the best? Maybe you just didn't know at the time.

 
Created on 11 February 2012 Written by Kevin Maloney Category: Kevin's Blog

kevin"Keeping them honest" -- where is the money?

Almost two months ago on World AIDS Day, December 1st 2011, President Obama thankfully promised an additional 35 million dollars that would go to state ADAP (AIDS Drug Assistance Programs). This money should have already been rolled out. However no state has yet to see any of these additional funds, and the frustration level in the HIV/AIDS community is building.

 
Created on 17 January 2012 Written by Kevin Maloney Category: Kevin's Blog

kevinAs goes Ohio, so could the Nation. The Ohio Health Department is putting up a strong fight to lower the federal poverty limit from its height of 500% in July 2010, lowered to 300% at that time, to now have the ability to implement a potential income eligibility change to as low as 100 % FPL at anytime with no notice to anyone with a stroke of pen. If that rule had gone into effect, it would mean in order to qualify for the AIDS Drug Assistance Program a single individual cannot make more than $10,890 a year in order to be eligible. Further, ODH could implement medical criteria one must also meet. Those given the highest priority will be PLWHA who’s CD4 counts are lower than 201. The medical criterion makes no mention of an important aspect of HIV care which is the Viral Load.

 


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